A VERY Important Study Needs Your Input!
Researchers of the LINC (Living with Neurological Conditions) study are looking at the burden on the parent of a child with epilepsy and on an adult with epilepsy. Details can be found here. In a nutshell –The research is being funded by Public Health Agency of Canada so the data that they collect will be used to improve services and to determine where Health Canada dollars should be designated.
So far, Parkinson’s has registered 30% of the participants; MS has registered 25%; and epilepsy has registered less than 1%! If we do not participate we will have zero evidence to support our need for services. It will also appear there is no burden on people living with epilepsy. So, please participate in the survey or distribute it to parents and other stakeholders. By incidence alone we should be able to generate the most responses of all neurological conditions.
Let’s have our voices heard! You can help to make a difference in the lives of everyone affected by epilepsy.
Class Action Law Suit Regarding Neurontin
The Ontario Superior Court of Justice has ordered the law firm of Siskinds LLP to distribute notice of a certification of a class action lawsuit to epilepsy organizations in Canada for distribution to their members in order to inform anyone using the anticonvulsant under the brand name of Neurontin of the existence of this class action lawsuit. Individuals who use generic gabapentin are not included in the class action lawsuit. In order to accommodate this request we have posted the notice on our website.
Please be advised that the Court has noted that the notice does not constitute medical advice. The Court has not at this time made any determination of the validity of the claims made by the plaintiffs.
The Court has also warned that patients who have been prescribed Neurontin should consult with their physicians if they have any questions with respect to their medical condition and should not stop taking Neurontin without consulting with their health care professional.
Volunteers Needed
The Center for Epilepsy and Seizure Education is a non-profit organization that creates and provides programs to assist, educate, and inform people living with epilepsy. We are in constant need of volunteers so if you are looking to do something different in your spare time and would like to make a difference in your community, this opportunity is for you.
How you can help:
| - Event preparation and planning | - Assist with public relations |
| - Newsletter | - Public surveys |
| - Administrative/office duties | - Community booths & fairs |
| - Writing grant proposals | - Research |
Click here to view the volunteer application form.
If you would like more information on any of the above, please call or e-mail us at:
(604) 853-7399